Author: Robin Bunton
Publisher: Psychology Press
ISBN: 9780415354073
Size: 54.18 MB
Format: PDF, Kindle
Category : Health & Fitness
Languages : en
Pages : 215
View: 5220

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Ethical and practical issues around genetic research are of major international concern, both in academia and in the public domain. This text looks at how the 'new' genetics and healthcare and health policy arising from it can or should be governed and regulated.

Author: Heather Widdows
Publisher: Cambridge University Press
ISBN: 0521509912
Size: 38.73 MB
Format: PDF
Category : Law
Languages : en
Pages : 235
View: 5700

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This volume suggests alternative ethical frameworks and models of regulation relating to the governance of genetic information.

Author: Matti Häyry
Publisher: Cambridge University Press
ISBN: 1139464043
Size: 76.33 MB
Format: PDF, ePub
Category : Law
Languages : en
Pages :
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The Medical Biobank of Umeå in Sweden, deCODE's Health Sector Database in Iceland, the Estonian Genome Project and the UK Biobank contain health data and genetic data from large populations. Some include genealogical or lifestyle information. They are resources for research in human genetics and medicine, exploring interaction between genes, lifestyle, environmental factors and health and diseases. The collection, storage and use of this data raise ethical, legal and social issues. In this book, first published in 2007, bioethics scholars examine whether existing ethical frameworks and social policies reflect people's concerns, and how they may need to change in light of new scientific and technological developments. The ethical issues of social justice, genetic discrimination, informational privacy, trust in science and consent to participation in database research are analyzed, whilst an empirical survey, conducted in the four countries, demonstrates public views of privacy and related moral values in the context of human genetic databases.

Author: Catherine Rhodes
Publisher: Edward Elgar Publishing
ISBN: 1781007004
Size: 56.84 MB
Format: PDF, ePub, Docs
Category : Nature
Languages : en
Pages : 272
View: 3622

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This timely study will be of interest to students and academics concerned with the management of genetic resources and its connection to issues such as intellectual property rights, biodiversity conservation and food security. It will appeal strongly t

Author: OECD
Publisher: OECD Publishing
ISBN: 9264028536
Size: 73.59 MB
Format: PDF, Mobi
Category :
Languages : en
Pages : 160
View: 374

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Summarises proceedings of a conference looking at examples of human genetic research databases, how they are established, how they are managed and governed, how they might be commercialised, and what the policy considerations might be.

Author: Sebastian Oberthür
Publisher: Routledge
ISBN: 1135135487
Size: 23.16 MB
Format: PDF, Docs
Category : Business & Economics
Languages : en
Pages : 268
View: 604

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This book analyses the status and prospects of the global governance of Access Benefit Sharing (ABS) in the aftermath of 2010’s Nagoya Protocol to the Convention on Biological Diversity (CBD). The CBD’s initial 1992 framework of global ABS governance established the objective of sharing the benefits arising from the use of genetic resources fairly between countries and communities. Since then, ABS has been a contested issue in international politics – not least due to the failure of effective implementation of the original CBD framework. The Nagoya Protocol therefore aims to improve and enhance this framework. Compared to the slow rate of progress on climate change, it has been considered a major achievement of global environmental governance, but it has also been coined a ‘masterpiece of ambiguity’. This book analyses the role of a variety of actors in the emergence of the Nagoya Protocol and provides an up-to-date assessment of the core features of the architecture of global ABS governance. This book offers a central resource regarding ABS governance for those working on and interested in global environmental governance. This is achieved by focusing on two broad themes of the wider research agenda on global environmental governance, namely architecture and agency. Furthermore, individual chapter contributions relate and link ABS governance to other prominent debates in the field, such as institutional complexes, compliance, market-based approaches, EU leadership, the role of small states, the role of non-state actors and more. Partly due to its seeming technical complexity, ABS governance has so far not been at the centre of attention of scholars and practitioners of global environmental governance. In this book, care is taken to provide an accessible account of key functional features of the governance system which enables non-specialists to gain a grasp on the main issues involved, allowing the issue of ABS governance to move centre-stage and be more fully recognised in discussions on global environmental governance.

Author: Olivier De Schutter
Publisher: Bloomsbury Publishing
ISBN: 1847315844
Size: 63.83 MB
Format: PDF, ePub
Category : Law
Languages : en
Pages : 266
View: 7286

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Reflexive governance offers a theoretical framework for understanding modern patterns of governance in the European Union (EU) institutions and elsewhere. It offers a learning-based approach to governance, but one which can better respond to concerns about the democratic deficit and to the fulfillment of the public interest than the currently dominant neo-institutionalist approaches. The book is composed of one general introduction and eight chapters. Chapter one introduces the concept of reflexive governance and describes the overall framework. The following chapters of the book then summarise the implications of reflexive governance in major areas of domestic, EU and global policy-making. They address in turn: Services of General Interest, Corporate Governance, Institutional Frames for Markets, Regulatory Governance, Fundamental Social Rights, Healthcare Services, Global Public Services and Common Goods. While the themes are diverse, the chapters are unified by their attempt to get to the heart of which concepts of governance are dominant in each field, and what their successes and failures have been: reflexive governance then emerges as one possible response to the failures of other governance models currently being relied upon by policy-makers.

Author: Anne Kerr
Publisher: Psychology Press
ISBN: 9780415300810
Size: 73.63 MB
Format: PDF, Docs
Category : Science
Languages : en
Pages : 197
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Genetic science has advanced rapidly. This work looks at the history of this science and the wide-ranging impact it has had on contemporary society.

Author: Antoinette Rouvroy
Publisher: Routledge
ISBN: 1134066686
Size: 65.69 MB
Format: PDF, ePub, Mobi
Category : Law
Languages : en
Pages : 320
View: 2214

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Original and interdisciplinary, this is the first book to explore the relationship between a neoliberal mode of governance and the so-called genetic revolution. Looking at the knowledge-power relations in the post-genomic era and addressing the pressing issues of genetic privacy and discrimination in the context of neoliberal governance, this book demonstrates and explains the mechanisms of mutual production between biotechnology and cultural, political, economic and legal frameworks. In the first part Antoinette Rouvroy explores the social, political and economic conditions and consequences of this new ‘perceptual regime’. In the second she pursues her analysis through a consideration of the impact of ‘geneticization’ on political support of the welfare state and on the operation of private health and life insurances. Genetics and neoliberalism, she argues, are complicit in fostering the belief that social and economic patterns have a fixed nature beyond the reach of democratic deliberation, whilst the characteristics of individuals are unusually plastic, and within the scope of individual choice and responsibility. This book will be of interest to all students of law, sociology and politics.

Author: Heather Widdows
Publisher: Cambridge University Press
ISBN: 1107008603
Size: 35.31 MB
Format: PDF
Category : Law
Languages : en
Pages : 205
View: 7762

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Heather Widdows suggests new ethical frameworks for genetic governance, to replace those that offer little protection and permit significant injustice.